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    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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EB Literature

Here you will find details of books that focus on EB, or aspects of the condition. There are too many research and medical publications on EB for us to list them all but try searching using Google Scholar or PubMed.

Specialist literature

Cover of the specialist book "Blistering Diseases"

Blistering Diseases, 2015


Murrell, D. F. (ed.) (2015) Blistering Diseases. Clinical Features, Pathogenesis, Treatment. Springer Verlag Berlin Heidelberg.

ISBN 978-3-662-45697-2

Occupational Therapy in Epidermolysis bullosa, 2012

Prinz F, Weiss H (2012) Occupational Therapy in Epidermolysis bullosa. A holistic concept for intervention from infancy to adult. Wien: Springer

ISBN 978-3-7091-1138-3

Junctional Epidermolysis bullosa, 2012

Yuen WY (2012): Junctional Epidermolysis bullosa. Dissertation. Groningen: University of Groningen

Epidermolysis Bullosa: Part I – Pathogenesis and Clinical Features, 2010

Murrell DF (ed.) (2010): Epidermolysis Bullosa: Part I – Pathogenesis and Clinical Features. Dermatologic Clinics, Vol 28/1. Philadelphia: W.B. Saunders Elsevier

ISBN: 978-1-4377-1812-6

Epidermolysis Bullosa: Part II – Diagnosis and Management, 2010

Murrell DF (ed.) (2010): Epidermolysis Bullosa: Part II – Diagnosis and Management. Dermatologic Clinics, Vol 28/2. Philadelphia: W.B. Saunders Elsevier

ISBN: 978-1-4377-1813-3

Cover "Life with EB"

Life with Epidermolysis bullosa (EB), 2009

Fine JD, Hintner H (eds) (2009) Life with Epidermolysis bullosa. Etiology, Multidisciplinary Care and Therapy. Wien New York: Springer

ISBN 978-3-211-79270-4

Experience reports

Book cover: Man with his daughter, a young woman with EB

Smile Daddy I am Dying, 2015

Robin Hood (2015): Smile Daddy I am Dying

Fiction

Book cover: Close-up of a woman's head and shoulders, with a  colourful butterfly sitting on her shoulder

Julie's Butterfly, 2014

Greta Milán (2014): Julie's Butterfly. AmazonCrossing.

ISBN 978-1477826065

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