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To complement our patient guides, we have developed a range of EB infographics that you can view here and download for free.


The EB infographics are very similar in content to our patient guides as their information and recommendations come from best clinical practice guidelines (CPGs). Whereas the patient guides are heavily text based, the EB infographics are more icon/picture based. This means that the infographics can be used as a simple, quick-reference guide on different aspects of EB clinical and social care.


Although targeted at people living in low resource settings, the information is still relevant to anyone living with or caring for someone with EB anywhere in the world.


Below, you can find the EB infographics we have created as well as information on the ones we are currently developing. and can act as a quick reference guide to help with daily management of EB.


What is EB?

DUE IN 2021

Healthy mind and control

Balanced life and social life

Healthy eating and nutrition

DUE IN 2022

Care of a newborn

Pregnancy and birth

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