Occupational therapy

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Improving participation in daily activities for children
living with EB

Who is this booklet for?

This booklet is for parents caring for a child living with any of the following types of EB who are experiencing limitations in their daily activities:

  • EB simplex (EBS)

  • dystrophic EB (DEB)

  • junctional EB (JEB)

  • Kindler EB (KEB)

  • EB acquisita (EBA) - autoimmune, not genetic*

*There was no evidence found in this population group for the CPG. However, it is assumed that they would require the same support.

What is this booklet about?

Topics covered in this booklet include:

  • what is an occupational therapist and what do they do?

  • activities of daily living (ADLs)

  • instrumental activities of daily living (IADLs)

  • using your hands

  • fine motor skills

  • oral feeding skills

  • how your child's occupational therapist can help

Am Heumarkt 27/1 | 1030 Vienna | Austria

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DEBRA International is a Charity registered in Austria (ZVR 932762489)

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