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EB HEALTH CARE - PATIENT GUIDES

Skin and wound care

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Guidance for adults with EB and their carers

Who is this booklet for?

This booklet is for adults (16+ years old) living with any of the following types of EB and their carers:

  • EB simplex (EBS)

  • dystrophic EB (DEB)

  • junctional EB (JEB)

  • Kindler EB (KEB)

  • EB acquisita (EBA) - autoimmune, not genetic*

*There was no evidence found in this population group for the CPG. However, it is assumed that they would require the same support.

What is this booklet about?

Topics covered in this booklet include:

  • the fundamentals of wound care management

  • dealing with infections

  • factors impacting healing

  • itch/pruritus

  • squamous cell carcinoma (SCC)

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