SUPPORT IN YOUR COUNTRY

Living with a rare condition like EB can be incredibly overwhelming and isolating at times, but it is important to remember that you are not alone. There are now nearly 50 DEBRA groups supporting individuals and families with EB globally in collaboration with EB clinical experts. This number grows nearly every year and we look forward to the day when there is DEBRA and expert EB clinical support in every country worldwide.

 

DEBRA GROUPS

Links to the websites of national DEBRA and EB support groups around the world

EB CLINICAL EXPERTS

Link to EB-CLINET, home to an international EB clinical expert database

 
 

DEBRA GROUPS

There are nearly 50 national DEBRA groups worldwide working to support people living with EB. Below, you can find a list of all countries where a DEBRA, or another EB patient support group, exists. Click on the flag to visit your national DEBRA or EB patient support group's website.


EB Without Borders

If there is not a group listed for your country below, visit our EB Without Borders page to see how the team can help. Remember, even if there is no DEBRA or EB patient support group in your country, there may still be EB clinical experts who can help you.

EB clinical experts

There are a number of EB clinical experts in countries worldwide. Even if there is no DEBRA or EB patient support group in your country, there may be healthcare professionals with EB expertise who can help you.

 
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DEBRA ARGENTINA

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DEBRA AUSTRALIA

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DEBRA AUSTRIA

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DEBRA BELGIUM

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DEBRA BOSNIA AND HERZEGOVINA

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DEBRA BRAZIL

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DEBRA CANADA

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DEBRA CHILE

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DEBRA CHINA

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DEBRA COLOMBIA

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DEBRA COSTA RICA

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DEBRA CROATIA

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DEBRA CUBA

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DEBRA CZECH REPUBLIC

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DEBRA FRANCE

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DEBRA GERMANY

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DEBRA HUNGARY

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DEBRA IRELAND

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DEBRA ITALY

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DEBRA SÜDTIROL - ALTO ADIGE

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DEBRA JAPAN

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DEBRA LIBYA

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DEBRA MALAYSIA

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DEBRA MEXICO

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DEBRA NETHERLANDS

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DEBRA NEW ZEALAND

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DEBRA NORWAY

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DEBRA POLAND

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DEBRA ROMANIA

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DEBRA RUSSIA

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DEBRA SERBIA

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DEBRA SINGAPORE

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DEBRA SLOVAKIA

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DEBRA SLOVENIA

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DEBRA SPAIN

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DEBRA SWEDEN

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DEBRA SWITZERLAND

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TAIWAN EB ASSOCIATION

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DEBRA UKRAINE

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DEBRA UK

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DEBRA OF AMERICA

 
 
 

EB CLINICAL EXPERTS

There are various EB clinical experts in countries around the world, many of whom work in close connection with DEBRA and other EB patient support groups.

EB-CLINET

EB-CLINET is an international network of EB centres and clinical experts. On their website, you can find a list of experts and their contact details. Remember, even if there is no EB clinical expert listed in your country, there are resources on EB care available on our website for you to share with your healthcare providers.

Clinical Practice Guidelines (CPGs)

Whether you have access to EB clinical experts or not, the clinical practice guidelines are an excellent resource to share with your healthcare providers to ensure that you are receiving the best care possible based on the latest best practice for EB.

 
 

If there is no DEBRA or EB support group in your country, find out how EB Without Borders can help

Access and download our free EB care resources to ensure you get the latest in best practice EB care

Learn about the general basics of research, EB clinical trials, and projects funded by DEBRA groups

 

DEBRA International is a Charity registered in Austria (ZVR 932762489)

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