Guideline objectives: to provide information regarding current best practice for the prevention of constipation
through the use of nutrition for all ages and all types of EB; promote increased oral intake of fibre-containing foods and fluids; encourage regular pain free bowel movement; reduce risk of chronic constipation, faecal impaction, pain and rectal bleeding, anal stricture; be used as a tool for prevention and treatment of constipation when there is no access to a specialist dietitian; encourage collaboration from around the world by the inclusion and addition of high fibre food table.
Target users: patients, parents and carers, dietitians and nutritionists, dermatologists, paediatricians, gastroenterologists, nurses, dentists, surgeons, psychologists, speech and language therapists, physiotherapists, occupational therapists, radiologists, and general practitioners.
Preventative nutritional care guideline constipation management for children and adults with epidermolysis bullosa (EB)
Published 2020 | Funded by DEBRA UK
Topics covered in this booklet include:
what is constipation?
incidence of constipation in EB
what is the role of fibre?
the causes of constipation in EB
prevention of constipation