EB INFORMATION & RESOURCES

All of our EB information and resources are available to download for free. They are designed for anyone who has EB or cares for someone who does. They are also useful to share with family, friends, teachers, colleagues, and the general public - in fact with anyone you need to in order to help explain what EB is. Many of our EB information and resources are also available in different languages!

WHAT IS EB?

Booklet

This booklet is a quick-reference guide on the key aspects of EB. Topics covered in this booklet include the types of EB and their symptoms and complications, care practices and who is involved, diagnosis and inheritance patterns, and much more.

1/6

Download your copy!

WHAT IS EB?

Poster

This A1 poster covers key information on what EB is, the four main subtypes, common symptoms and complications, and how to care for a newborn with EB. Ideal for a variety of locations from the school classroom or office kitchen to the doctor's waiting room.

1/1

Download your copy!

WHAT IS EB? NEWBORN WITH EB

Leaflet

This two-sided leaflet covers key information on what EB is and how to care for a newborn with EB. Ideal as a quick reference guide for parents of a baby recently diagnosed with EB as well family, friends, and non-EB health and social care professionals.

1/1

Download your copy!

EB CARD

Do you know someone living with EB? They can download and print our EB card to help easily explain to anyone in their community what EB is and how it affects them/their child as well as get access to emergency care information.

EB card