MEET THE TEAM

Meet the national DEBRA group representatives who make up the members of the Executive Committee that governs DEBRA International, and the staff members who head up the organisation's programmes.

ANGELIQUE SAUVESTRE

President

Her motto: "nothing for us without us"

RITU JAIN

Vice President

Ritu is wife and mum to brave EB warriors and is the founder of DEBRA Singapore.

JIMMY FEARON

Vice President

Jimmy is a passionate leader in the not-for-profit sector joining DEBRA Ireland as CEO in 2008.

LEANDRO ROSSI

Treasurer

Leandro is from Belo Horizonte, Brazil and is president of DEBRA Brasil. He has a nephew and godson with EB.

RAINER RIEDL

Vice Treasurer

Rainer is founder of DEBRA Austria and has been Executive Director for nearly 25 years.

EVANINA MORCILLO MAKOW

Secretary

Evanina lives in Marbella, Spain and is director of DEBRA Piel de Mariposa (Spain).

ANDREAS MILLER

Vice Secetary

Andreas is from Berlin, Germany, he lives with junctional Epidermolysis Bullosa and is Managing Director of DEBRA Deutschland.

CLAIRE MATHER

Committee member

Claire has been working closely with patients and families with EB for over 15 years at DEBRA UK.

RYAN HULTMAN

Committee member

Ryan is Vice President of DEBRA Canada and has a 13-year-old with RDEB.

RUTHIE WINBLAD

Committee member

Ruthie has a background as a nurse and a wound specialist.

SETSUKO SHIRAISHI

Committee member

Setsuko is from Mexico City in Mexico and is the Executive Director of DEBRA Mexico.

MARY-JEAN HOWARD

Committee member

Mary-Jean Howard is the CEO of DEBRA Australia and is based in Sydney, Australia.

ROLF MUELLER

Committee member

Rolf is CEO of DEBRA Switzerland and brings extensive experience in healthcare, medical technology, market access, and reimbursement.

MARIANGELA PELLEGRINI

Executive Director

Mariangela has nearly 10 years of experience in rare diseases, with a background in political philosophy, patient engagement, and advocacy. Her work focuses on patient-centred research, care, and health policy

EMELINE BAILLARGEAULT

Interim Project Manager