EB WITHOUT BORDERS

EB is a rare medical condition and as such, there are many people (the general public and healthcare professionals alike) who may not have heard of it before. We understand how worrying and daunting a situation like this can be. The EB Without Borders project was created to help people living with EB in any country where there is no DEBRA support in place and little to no EB medical knowledge.


Don't forget to check our Support in your country page first to see whether there is already an established DEBRA or EB patient support group, and EB clinical contacts in your country.

 

WHO WE ARE

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HOW WE CAN HELP

Find out more about the types of support we can provide

CONTACT US

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HOW WE CAN HELP

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WE CAN:

  • provide you with general information and facts about EB to share with the general public and healthcare professionals in your country who are not familiar with the condition.

  • provide you and healthcare professionals with resources on the latest best practice for EB care.

  • aid communication and the exchange of knowledge between healthcare professionals in your country and international EB clinical experts.​

  • link you to other people in your country who are also living with EB.

  • support and mentor you to set up a sustainable DEBRA group in your country.

WE CANNOT:

  • give medical advice under any circumstances.

  • provide you with financial support.

  • supply you with bandages, creams, or any other medical products.

 
 

Find out about the DEBRA groups that exist in your country as well as contact details for clinical experts

Access and download our free EB care resources to ensure you get the latest in best practice EB care

Learn about the general basics of research, EB clinical trials, and projects funded by DEBRA groups

 

DEBRA International is a Charity registered in Austria (ZVR 932762489)

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