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DEBRA Community I


The first DEBRA group was founded in the United Kingdom in 1978 by a group of parents whose children had EB. From these humble origins, DEBRA has grown significantly and is now international in scope. Over the past 40+ years, we have seen the establishment of nearly 50 national DEBRA groups around the world all working towards improving the lives of those living with EB in their respective countries.


With an increasing number of groups sharing common goals and working on common activities, it became clear that more could be achieved working together than each group working alone. DEBRA Europe was established in 1992 to serve as the central body of an international network made up of DEBRA (and other EB patient support) groups as its members. The organisation subsequently became DEBRA International in 2008 to reflect the ever-increasing international scope of its membership.

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