PSYCHOSOCIAL CARE

Psychosocial support means helping to support psychological, social, emotional, and spiritual wellbeing. This is formed during a person’s lifetime and is influenced by environmental factors as well as factors that are unique to each individual.

1/6

SUPPORT FOR PARENTS CARING FOR A CHILD LIVING WITH EB

Topics covered in this booklet include:

  • the parent-child relationship

  • wound care and pain management

  • life stages and transitions

  • impact on family life

  • care for the caregiver

  • communication

Download your copy!

1/6

SUPPORT FOR ADULTS LIVING WITH EB

Topics covered in this booklet include:

  • wound care and pain management

  • self-advocacy and independence

  • life stages and transitions

  • when to get help

  • EB team/healthcare provider help

Download your copy!

1/6

SUPPORT FROM YOUR EB TEAM / HEALTHCARE PROVIDERS

Topics covered in this booklet include:

  • who are the EB team/healthcare providers?

  • what can the EB team/healthcare providers do?

  • the role of the EB team/healthcare providers

  • the importance of working together with the EB team/healthcare providers

  • the importance of EB awareness education

  • the importance of working on pain management together

Download your copy!

Doctor's Desk
SHARE WITH YOUR HEALTHCARE PROFESSIONAL

The information and recommendations in these patient guides come from the Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines. Share this document with your psychosocial and/or EB healthcare professional to help guide them in your treatment and care.