Psychosocial care

Psychosocial support means helping to support psychological, social, emotional, and spiritual wellbeing. This is formed during a person’s lifetime and is influenced by environmental factors as well as factors that are unique to each individual.

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FOR ADULTS WITH EB

Topics covered in this booklet include:

  • wound care and pain management

  • self-advocacy and independence

  • life stages and transitions

  • when to get help

  • EB team/healthcare provider help

OTHER LANGUAGES

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Psychosociale ondersteuning voor volwassenen met epidermolysis bullosa (EB)

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Psicossocial suporte para adultos vivendo com epidermólise bolhosa (EB)

FOR PARENTS CARING FOR A CHILD WITH EB

Topics covered in this booklet include:

  • the parent-child relationship

  • wound care and pain management

  • life stages and transitions

  • impact on family life

  • care for the caregiver

  • communication

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OTHER LANGUAGES

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Psychosociale ondersteuning voor ouders van een kind met epidermolysis bullosa (EB)

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SUPPORT FROM YOUR EB TEAM

Topics covered in this booklet include:

  • who are the EB team/healthcare providers?

  • what can the EB team/healthcare providers do?

  • the role of the EB team/healthcare providers

  • the importance of working together with the EB team/healthcare providers

  • the importance of EB awareness education

  • the importance of working on pain management together

OTHER LANGUAGES

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Psychosociale ondersteuning door je EB-team/zorgverleners

 
 
 
Doctor's Desk

FOR YOUR HEALTHCARE PROFESSIONAL

Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines