Guideline objectives: to outline the current understanding of the interaction between EB and sexuality, provide preliminary recommendations for assessment and intervention strategies to support valued sexual participation for individuals living with EB, establish future research priorities within this domain, and highlight currently available resources to support clinicians in meeting the expectations of these guidelines.
Target users: all members of a multidisciplinary EB team. The guidelines may also be useful for individuals living with EB and their families, carers, partners, and communities.
Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines
Published 2021 | Funded by DEBRA Norway
Topics covered in this booklet include:
current understanding of EB and sexuality
preliminary recommendations for assessment and intervention strategies
future research priorities within this domain