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Holding Hands

Pain care

Guideline objectives: to provide information on pain care for children and adults with inherited EB.

Target users: health practitioners, people living with EB and their families.

Pain care for patients with epidermolysis bullosa: best care  practice guidelines
Published 2014

Topics covered in this booklet include:

  • psychological and integrative approaches

  • acute pain care: postoperative pain management

  • chronic and recurrent pain care

    • skin and wound pain

    • bathing and dressing changes

    • pain related to the gastrointestinal tract

    • musculoskeletal pain

  • pain care in infants with EB

  • end of life pain care

  • pruritus

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