Pain care
Guideline objectives: to provide information on pain care for children and adults with inherited EB.
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Target users: health practitioners, people living with EB and their families.
Pain care for patients with epidermolysis bullosa: best care practice guidelines
Published 2014
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Topics covered in this booklet include:
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psychological and integrative approaches
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acute pain care: postoperative pain management
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chronic and recurrent pain care
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skin and wound pain
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bathing and dressing changes
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pain related to the gastrointestinal tract
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musculoskeletal pain
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pain care in infants with EB
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end of life pain care
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pruritus
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