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NEWS


UZ Leuven is officially becoming the reference hospital for coordinating care for all people with Epidermolysis Bullosa (EB) in Belgium
UZ Leuven and NIHDI have signed a key convention, enabling tailored care plans and coordinated support for EB patients, a major step forward in rare disease care.
Jul 3


Graeme Souness completes epic swim challenge for DEBRA UK
Graeme Souness completed a 22-hour swim for DEBRA UK, raising £730,000 to support vital research and raise awareness for the painful skin condition EB.
Jun 12


Hope and Healing: wellbeing and mental health support for families in Romania
Mini DEBRA Romania launched a new initiative offering tailored psychotherapy to improve the mental health and wellbeing of individuals and families with EB.
Jun 5


Voices for Change: DEBRA Jordan hosts Awareness Day
Voices for Change united Jordan’s EB community to raise awareness, share experiences, and advocate for better care and support.
Jun 5


NEW! Management of Oesophageal Strictures in Inherited EB: a Clinical Practice Guideline now published
This is an essential tool for health professionals, highlighting management priorities in the care of oesophageal strictures in inherited epidermolysis bullosa (EB) and provide clinicians access to recommended diagnostic, treatment, and preventative care options.
Jun 5


EB day at Dynamo Academy – a special gathering in Italy
Debra Italia’s EB Day at Dynamo Academy brought the EB community together for two days of connection, learning, and support in Tuscany.
May 22


DEBRA France celebrates 40 year anniversary
DEBRA France marked 40 years with families, workshops, awards, and a zoo visit, celebrating decades of support and community in the fight against EB.
May 22


Women of Egypt honor Hanaa El Sadat with Women of Impact Award
Women of Egypt recognized DEBRA Egypt founder Hanaa El Sadat with the Women of Impact Award for her life-changing work supporting children with the rare skin condition EB.
May 22


DEBRA International at the 15th World Congress of Pediatric Dermatology in Buenos Aires
DEBRA International joined the 15th WCPD in Buenos Aires to raise EB awareness, share resources, and connect with global dermatology professionals and partners.
May 21
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