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Please read these terms of use carefully before you start to use this website (

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Use of the website

In these terms of use, the following definitions apply:


  • “DEBRA International”, “we”, “us”, or “our” refer to DEBRA International;

  • "Content" means all information, text, data, documents, graphics, images, links, computer code, or other materials or resources contained on; distributed through; or linked, downloaded, or accessed from this website;

  • "User", “you”, or “your” refer to any individuals or organisations accessing and performing actions on our website.


This website is owned and operated by DEBRA International. By accessing and performing actions on our website, you agree to be bound by the terms of use set out on this page. If you do not agree to these terms of use, you may not access or use this website.


These terms of use apply to this website however you access it, including accessing a version of this website optimised for use on mobile devices.


We cannot guarantee that the website will be uninterrupted or error free. Temporary connection interruptions may occur. We reserve the right to do maintenance work at any time. We reserve the right to discontinue, change, or expand upon, temporarily or permanently, this website (or any part thereof) with or without notice to you at any time and at our sole discretion.

Your lawful use of this website

When you use the website, you must not in any way breach any applicable law or regulation, or knowingly introduce malware, such as viruses, trojans, worms, logic bombs, or similar harmful computer code designed to adversely affect computer software or hardware.

Reliance on information on this website

The information on our website and downloadable content from our website is provided for general information purposes only and does not claim to be or constitute medical or other professional advice on which you should rely.


DEBRA International has prepared the content of this website with due care. However, we make no guarantees, conditions, or warranties that the content is accurate, complete, or up to date.

Limitation of liability

DEBRA International will not be liable for any direct, indirect, incidental, or consequential claims, losses, demands, or damages of any kind whatsoever arising out of your use of the website or reliance on the information on the website.

Copyright protection

© 2021, DEBRA International. All rights reserved.


We are the owner or the licensee of all intellectual property rights on our site, and in all content published on it. These works are protected by copyright laws and treaties around the world. All such rights are reserved.


Unless where specifically stated otherwise, no content may not be copied, sent, made available, presented, performed, modified, translated or utilised without express written permission from DEBRA International.

Linking to

You do not need to request permission to create an external text link from your website to However, linking to is subject to the following conditions:

  • Links must show complete pages including the navigation frame. It is forbidden to implement single websites in external frames as well as to provide RSS feeds on external websites.

  • Use of the following descriptive text: “DEBRA International is the central body for a worldwide network of national DEBRA and EB patient support groups working on behalf of those affected by the genetic skin blistering condition epidermolysis bullosa (EB)”.

  • If you would like to use a logo or graphic alongside a link, please contact


Although DEBRA International makes all reasonable attempts to exclude malware from the website, we cannot ensure such exclusion and no liability is accepted for loss or damage caused by a distributed denial-of-service attack, viruses, or other technologically harmful material that may infect your computer equipment, programmes, data, or other proprietary material due to your use of our site or to your downloading of any of its content. The user must take all appropriate safeguards before using and accessing the website.

Linking to third party websites

Our website may contain links to other websites owned and operated by third parties. These links are provided for your information only. We do not link to individual personal websites and will not knowingly provide links to websites that contain illegal, offensive, or misleading information.


We have no control over the content of third party websites or resources, and accept no responsibility for them or for any loss or damage that may arise from your use of them. It is the responsibility of the user to assess the accuracy and integrity of any information, goods, or services provided by such websites. When accessing a third party website, we advise you to check their terms of use and privacy policy to ensure compliance and determine how they may use your information.


DEBRA International’s inclusion of links to such websites does not necessarily represent any endorsement of their content or any association with their operators.


Although the website uses encryption security software in areas where online payment details are accepted, the security of information and payments transmitted via the Internet cannot be guaranteed. DEBRA International will not be liable for any loss incurred by any user who transmits information by means of email or other Internet links.

Jurisdiction and applicable law

Any legal dispute arising from the use of the website shall be governed exclusively by Austrian substantive law, without giving effect to any principles of conflicts of law. In case of a consumer contract, the choice of law is effective to the extent that no more stringent consumer protection law at consumer's residence is applicable.


All disputes directly or indirectly relating to or in connection with the use of the website, including the question of the applicability of the terms of use, shall be governed exclusively by the Austrian court having jurisdiction ratione loci and ratione materiae for 1010-Vienna, Austria. This agreement only applies to consumers as set out in the Austrian law on consumer protection if they have neither their residence nor their habitual abode in Austria and if they do not work in Austria.

Changes to these terms of use

The most recent version of the terms of use will be indicated as such with the date of revision published at the bottom of this page. You are obliged to regularly check this page regularly for new amendments. Any subsequent use by you of this website following the publication of changes to the terms of use constitutes your acceptance of any such changes.

Other terms that may apply to you

See our Privacy Policy to find out more about how we process personal data that we collect from you or that you provide to us.


See our Cookies Policy to learn more about what cookies we use, their nature, purpose and the related usage of your personal information on our website.

Contact us

If you have any questions, comments, concerns in relation to these terms of use, please contact us at

Page last updated: January 2022

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