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EB HEALTH CARE - PATIENT GUIDES

Podiatry

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Dystrophic nail care for people living with EB

Who is this booklet for?

This booklet is for parents caring for a child living with any of the following types of EB:

  • EB simplex (EBS)

  • dystrophic EB (DEB)

  • junctional EB (JEB)

  • Kindler EB (KEB)

  • EB acquisita (EBA) - autoimmune, not genetic*

*There was no evidence found in this population group for the CPG. However, it is assumed that they would require the same support.

What is this booklet about?

Topics covered in this booklet include:

  • what are dystrophic nails in EB?

  • what are the recommended treatments?

  • helpful tips

  • wound care and pain management

  • staying active and mobile

  • how your/your child’s podiatrist can help

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