The 1st MENA Region and African International EB Congress
25th - 28th April 2024
Yasmin El-Samra Charity Foundation, Debra Egypt
African, MENA, Egyptian and International speakers come together to highlight EB and genodermatoses research at the cutting edge in the global arena. It is an opportunity to meet your friends and colleagues in the field of Epidermolysis Bullosa, Genodermatoses and Human Genetics and to discuss pertinent issues of mutual interest.
The congress will be starting on the 25th by a genodermatoses full day sessions aiming at including geneticists and dermatologists within the DEBRA community and raise awareness about incidence and updates on management and research of orphan disorders particularly EB specially in the MENA region and Africa where consanguineous marriage is a still a tradition with expected high incidence of those disorders.
Review practice-changing data on the efficacy and safety of new and emerging therapies, and determining which treatments are appropriate for which patients
Efficacy data from practice-changing clinical trials on new and emerging therapies
Outline adverse events associated with novel therapies and approaches to mitigate these effects
Patients advocacy able to discuss their needs and whether fulfilled through novel approaches
Ultimately the meeting aims at establishing a Network bridging gaps both on patients’ advocacy and on technology transfer levels to the MENA region and Africa.