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Living with a rare condition like EB can be incredibly overwhelming and isolating at times, but it is important to remember that, whether you have EB yourself or care for someone who does, you are not alone. There are now nearly 50 DEBRA groups worldwide working to support individuals and families living with EB. This number grows nearly every year and we look forward to the day when there is a DEBRA group in every country.


On this page, you can find a list of all countries where a DEBRA, or other EB patient support, group exists. Click on the flag to view the website, social media page, or email address of your national DEBRA or EB patient support group.

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