• Welcome to DEBRA International. We are the umbrella organisation for a worldwide network of  national groups that work on behalf of those affected by the rare genetic skin blistering condition, Epidermolysis Bullosa (EB).
  

  

  EB2020: 1st Global Congress on Epidermolysis Bullosa
  This ground-breaking meeting will, for the first time, bring together all global knowledge in EB research, clinical management and the EB community.
  More information

  

  Research into EB
  Although there is currently no cure, a lot is going on in EB research and therapy development. Find here research news, and information on our research priorities, funding for research, and ongoing clinical trials.

  

  For patients and carers
  Find practical information and guidelines on the tasks and challenges you may face in living with EB or caring for someone with EB as well as links to the EB Online Community.

  

  For medical professionals
  Become involved in the development of Clinical Practice Guidelines (CPGs) for EB, find information on professional training courses, and join a growing network of EB experts with EB-CLINET.

  

  Media center
  Find videos about EB and research, real life EB patient stories, and promotional videos and images of our campaign "This is how life feels to people with EB".
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  Events

  • 19-23 January 2020
    London, UK
    EB2020 - 1st Global Congress on EB
    Find out more

  Annual Review 2017

  

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