• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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  • Welcome to DEBRA International. We are the umbrella organisation for a worldwide network of  national groups that work on behalf of those affected by the rare genetic skin blistering condition, Epidermolysis Bullosa (EB).

    Researcher Michele De Luca and colleagues reconstructed skin covering approximately 80% of the total body surface area for a seven-year-old child suffering from Junctional EB. Read more here.

    But what does this all mean and what happens next? After the exciting news share, we've thought of some of the answers to questions you may have regarding this exciting research!

    National DEBRAs and EB groups
    DEBRA International has over 50 member groups worldwide and the list is constantly growing. Here you can find the groups available in your country and their contact information.

    Abstract world map with blue butterfly icon

    EB Without Borders
    The mission of this core initiative of DEBRA International is to help patients, families, and doctors in countries where there is no support as yet, and to assist new DEBRA groups to form and develop.

    EB Researcher in lab

    Research into EB
    Although there is currently no cure, a lot is going on in EB research and therapy development. Find here research news, and information on our research priorities, funding for research, and ongoing clinical trials.

    Female doctor holding a baby with EB

    For patients and carers
    Find practical information and guidelines on the tasks and challenges you may face in living with EB or caring for someone with EB as well as links to the EB Online Community.

    Doctors holding folders

    For medical professionals
    Become involved in the development of Clinical Practice Guidelines (CPGs) for EB, find information on professional training courses, and join a growing network of EB experts with EB-CLINET.

    Media center
    Find videos about EB and research, real life EB patient stories, and promotional videos and images of our campaign "This is how life feels to people with EB".

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    Events

    Annual Review 2017