• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

donate now
  • Welcome to DEBRA International.

    We are the umbrella organisation for a worldwide network of national groups that work on behalf of those affected by the rare genetic skin blistering condition,
    Epidermolysis Bullosa (EB).

    Explore the work we do

    Abstract world map with blue butterfly icon

    EB Without Borders
    The mission of this core initiative of DEBRA International is to help patients, families, and doctors in countries where there is no support as yet, and to assist new DEBRA groups to form and develop.

    Doctors holding folders

    Clinical Practice Guidelines
    A call for clinical experts to get involved in our project to develop clinical practice guidelines (CPGs) for EB.

    EB Researcher in lab

    Research into EB
    Although there is currently no cure, a lot is going on in the field of EB research and therapy development.

    DEBRA logos (TBLR) UK, Singapore, Czech Republic, Canada, Portugal, New Zealand, Ireland, USA, Australia

    National DEBRAs and EB groups
    DEBRA International has over 50 member groups worldwide and the list is constantly growing. Find information on your national group here.

    DEBRA International News

    2016 DEBRA International Conference Zagreb
    2016-2017 Executive Committee

    DEBRA Croatia proud to host the 2016 DEBRA International Conference
    Read all about the success of the 2016 DEBRA International Conference held in Zagreb, Croatia, and the latest on changes going on in DEBRA International.
    Read more here!

    Mike Jaega is sixth from the left

    Meet DEBRA International’s new President, Mike Jaega from DEBRA UK
    A Q&A with DEBRA International’s recently-elected President
    Read more here!

    Introducing DEBRA International’s new Business Manager, Liv Mullins
    Liv Mullins explains her role as Business Manager
    Read more here!

  • Keep up to date with all the latest on DEBRA.
    Follow us!

    Keep up to date with the DEBRA Newsletter.
    Sign up now!

    Events

    • 15–16 December 2016
      Santiago de Chile, Chile
      IX. Simposio Internacional de Epidermolysis Bulosa 2016
      Find out more


      24-26 September 2017
      Salzburg, Austria
      EB2017 Research Conference
      Detailed information to follow soon


      26-27 September 2017
      Salzburg, Austria
      4th EB-Clinet Conference 2017
      Detailed information to follow soon


      24-26 November 2017
      Wellington, New Zealand
      DEBRA International Conference 2017
      Detailed information to follow soon

    Annual Review 2016

  • Research & CPGs News

    New sites for ESSENCE Study Clinical Trial now enrolling participants!

    2 new sites are now accepting patients to participate in the ESSENCE Study Clinical Trial: Madrid, Spain, and Freiburg Germany. The latter is accepting English-speaking patients; all supporting material will be in English and all travel support will be provided. 

    Find out all the details here!

    Webinar on Clinical Trials
    What's involved in taking part in a clinical trial? Hear from previous clinical trial participants, doctors, and a company undertaking clinical trials.
    Watch the webinar now!

  • Events News

    Save the Date(s)!
    The EB2017 Research Conference will take place in Salzburg from 24-26 September 2017. The
     4th Conference of EB-CLINET and the 47th Annual ESDR Meeting 2017 will take place at the same venue from 26-27 September 2017 and from 27-30 September respectively. Detailed information to follow soon.

  • DEBRAs Around the World News

    The 20th anniversary of DEBRA Croatia

    Premiered at the DEBRA International Conference in Zagreb, this wonderful documentary celebrates the hard work and global collaboration that went into the creation of DEBRA Croatia.
    Watch the documentary now!