• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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  • Welcome to DEBRA International

    DEBRA International is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition epidermolysis bullosa (EB).
    On our site, you will find information about the condition, appropriate medical care, research into EB and living with EB as well as links to the national DEBRA groups around the world.
    Our vision is to ensure that people living with EB have access to the best quality support and medical care, while also driving the development of effective treatments and cures.

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    Educational Webinar - Information about Clinical Trials

    What's involved in taking part in a clinical trial? In this information Webinar hear from people who have taken part in a clinical trial, doctors, and a company undertaking clinical trials.

    Poster with conference dates and venue, in pink and purple colouring

    DEBRA International Congress 2016 in Zagreb

    The upcoming annual congress will be hosted by DEBRA Croatia and take place 22-25 September. Earlybird registration by 1 July 2016. Join us!

    Infographic about the different types of EB

    What is EB?

    Doctors holding folders

    Clinical practice guidelines

    Abstract world map with blue butterfly icon

    EB Without Borders

    Logo of the campaign for a European Year for Rare Diseases 2019: Four hands (in blue, red, green and yellow) build a frame around the text

    Campaign for European Year for Rare Diseases 2019

    Support the campaign and help 2019 become a full European Year to put rare diseases in the spotlight!

  • Events

    Annual Review 2016

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