• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT656000000510045254, BIC OPSKATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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  • Welcome to DEBRA International

    DEBRA International is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition epidermolysis bullosa (EB).
    On our site, you will find information about the condition, appropriate medical care, research into EB and living with EB as well as links to the national DEBRA groups around the world.
    Our vision is to ensure that people living with EB have access to the best quality support and medical care, while also driving the development of effective treatments and cures.

    Logo of the campaign for a European Year for Rare Diseases 2019: Four hands (in blue, red, green and yellow) build a frame around the text

    Campaign for European Year for Rare Diseases 2019

    Support the campaign and help 2019 become a full European Year to put rare diseases in the spotlight!

    Infographic about the different types of EB

    What is EB?

    Doctors holding folders

    Clinical practice guidelines

    Abstract world map with blue butterfly icon

    EB Without Borders

    Screenshot of promotional video "Hammock", showing a hammock made of barbwire

    Media center

    Find videos about the condition EB as well as promotional videos and images of our campaign "This is how life feels to people with EB".

  • Events

    • 3-4 September, Buenos Aires

      Simposio de Epidermolisis Bullosa

      11 September, Brisbane

      DEBRA Australia Health Professionals Day

      24-25 September, London

      3rd EB-CLINET Conference

      25-26 September, London

      DEBRA International Annual Congress

    Annual Review 2014

    Cover of the DEBRA Intl Annual Review 2014, with a mosaic of pictures of DEBRA delegates, teams and people with EB

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