• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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  • Welcome to DEBRA International. We are the umbrella organisation for a worldwide network of  national groups that work on behalf of those affected by the rare genetic skin blistering condition, Epidermolysis Bullosa (EB).

    Results of phase III trial SD-101 FREE webinar
    Global Genes and Amicus Therapeutics are inviting the international EB Community to join a FREE webinar on Tuesday 27 March at 6pm Central Daylight Time (UTC-5). Dr. Amy Paller will be present the findings/results and take questions from the EB Community. If you are unable to attend the webinar, a link to the recording will be provided shortly after.
    Agenda | Webinar link | Call-in information

    Abstract world map with blue butterfly icon

    Closing of Amicus Therapeutics' EB Extension Studies and Expanded Access to SD-101 topical cream
    For individuals who would like to continue having access to SD-101 after closure of the open-label extension studies and until supplies are depleted, consideration will be provided to patients whose physicians apply to the Amicus Expanded Access to Investigational Drugs programme.
    Find out more information

    EB Researcher in lab

    Research into EB
    Although there is currently no cure, a lot is going on in EB research and therapy development. Find here research news, and information on our research priorities, funding for research, and ongoing clinical trials.

    Female doctor holding a baby with EB

    For patients and carers
    Find practical information and guidelines on the tasks and challenges you may face in living with EB or caring for someone with EB as well as links to the EB Online Community.

    Doctors holding folders

    For medical professionals
    Become involved in the development of Clinical Practice Guidelines (CPGs) for EB, find information on professional training courses, and join a growing network of EB experts with EB-CLINET.

    Media center
    Find videos about EB and research, real life EB patient stories, and promotional videos and images of our campaign "This is how life feels to people with EB".

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    • 9-11 May 2018
      Krakow, Poland
      EWMA 2018
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      10-12 May 2018
      Vienna, Austria
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      26-29 April 2018
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      7-9 September 2018
      Zermatt, Switzerland
      DEBRA International Congress
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    Annual Review 2017