• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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  • Welcome to DEBRA International. We are the umbrella organisation for a worldwide network of  national groups that work on behalf of those affected by the rare genetic skin blistering condition, Epidermolysis Bullosa (EB).

    Registration now open for 2018 DEBRA International Congress
    Taking place in the picturesque town of Zermatt in Switzerland, the 2018 DEBRA International Congress will be taking place on 7-9 September.
    More information         Register now!     Submit an abstract

    Abstract world map with blue butterfly icon

    Watch and take part in an Externally-Led Patient-Focussed Drug Development Meeting with the FDA
    DEBRA of America is excited to announce that they will be meeting directly with the US Food and Drug Administration (FDA) on Friday 6th April at 7pm CEST. This incredibly important meeting gives those with EB and those caring for people with EB the opportunity to educate the FDA about daily life with EB including symptoms, issues faced, and the importance of therapy development. Watch the meeting live over a webcast and participate through live polling.  
    Find out more

    EB Researcher in lab

    Research into EB
    Although there is currently no cure, a lot is going on in EB research and therapy development. Find here research news, and information on our research priorities, funding for research, and ongoing clinical trials.

    Female doctor holding a baby with EB

    For patients and carers
    Find practical information and guidelines on the tasks and challenges you may face in living with EB or caring for someone with EB as well as links to the EB Online Community.

    Doctors holding folders

    For medical professionals
    Become involved in the development of Clinical Practice Guidelines (CPGs) for EB, find information on professional training courses, and join a growing network of EB experts with EB-CLINET.

    Media center
    Find videos about EB and research, real life EB patient stories, and promotional videos and images of our campaign "This is how life feels to people with EB".

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    Events

    Annual Review 2017