• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT65 6000 0005 1004 5254, BIC BAWAATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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  • Welcome to DEBRA International. We are the umbrella organisation for a worldwide network of  national groups that work on behalf of those affected by the rare genetic skin blistering condition, Epidermolysis Bullosa (EB).

    National DEBRAs and EB groups
    DEBRA International has over 50 member groups worldwide and the list is constantly growing. Here you can find the groups available in your country and their contact information.

    Abstract world map with blue butterfly icon

    EB Without Borders
    The mission of this core initiative of DEBRA International is to help patients, families, and doctors in countries where there is no support as yet, and to assist new DEBRA groups to form and develop.

    EB Researcher in lab

    Research into EB
    Although there is currently no cure, a lot is going on in EB research and therapy development. Find here research news, and information on our research priorities, funding for research, and ongoing clinical trials.

    Female doctor holding a baby with EB

    For patients and carers
    Find practical information and guidelines on the tasks and challenges you may face in living with EB or caring for someone with EB as well as links to the EB Online Community.

    Doctors holding folders

    For medical professionals
    Become involved in the development of Clinical Practice Guidelines (CPGs) for EB, find information on professional training courses, and join a growing network of EB experts with EB-CLINET.

    Media center
    Find videos about EB and research, real life EB patient stories, and promotional videos and images of our campaign "This is how life feels to people with EB".

    DEBRA International News

    DEBRA International Conference 2017 save the dates

    Registration is now open for the 2017 DEBRA International Congress
    The 2017 DEBRA International Congress is coming to Wellington hosted by DEBRA New Zealand! Visit the website now for more information on registration, the venue, accommodation, Wellington, and pre/post conference touring. Check back for updates on the programme and speakers in the coming months!
    Find out more here!

    Mike Jaega is sixth from the left

    Meet DEBRA International’s new President, Mike Jaega from DEBRA UK
    A Q&A with DEBRA International’s recently-elected President.
    Read more here!

    Introducing DEBRA International’s new Business Manager, Liv Mullins
    Liv Mullins explains her role as Business Manager.
    Read more here!

  • Events

    • 16 June 2017
      London, UK
      Bone Health in EB Study Day
      Find out more

      24-26 September 2017
      Salzburg, Austria
      EB2017 Research Conference
      Find out more

      26-27 September 2017
      Salzburg, Austria
      4th EB-CLINET Conference 2017
      Find out more

      24-26 November 2017
      Wellington, New Zealand
      DEBRA International Congress 2017
      Find out more

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    Annual Review 2016