• Help people with EB

    Your support of DEBRA International or a national EB group enables us to provide the best quality of life for families and individuals affected by EB.

Donation Account: IBAN AT656000000510045254, BIC OPSKATWW, DEBRA International, Am Heumarkt 27/1, 1030 Vienna

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  • Welcome to DEBRA International

    DEBRA International is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition epidermolysis bullosa (EB).
    On our site, you will find information about the condition, appropriate medical care, research into EB and living with EB as well as links to the national DEBRA groups around the world.
    Our vision is to ensure that people living with EB have access to the best quality support and medical care, while also driving the development of effective treatments and cures.

    Infographic about the different types of EB

    What is EB?

    EB Researcher in lab

    Research into EB

    Although there is currently no cure, a lot is going on in the field of EB research and therapy development.

    Female doctor holding a baby with EB

    Caring for someone with EB

    Find support and information on the tasks and challenges you may face in living with EB or caring for someone with EB.

    Abstract world map with blue butterfly icon

    EB Without Borders

    Doctors holding folders

    Clinical practice guidelines

    Screenshot of promotional video "Hammock", showing a hammock made of barbwire

    Media center

    Find videos about the condition EB as well as promotional videos and images of our campaign "This is how life feels to people with EB".

  • Events


    • 8-10 October, Herrenchiemsee

      From Rare to Care II


      16-17 October, London

      Professional training event: EB Study Day


      7-9 November, Shenzhen

      2nd IRDiRC conference

    Annual Review 2014

    Cover of the DEBRA Intl Annual Review 2014, with a mosaic of pictures of DEBRA delegates, teams and people with EB

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