MEMBERSHIP
Join a global community committed to improving the lives of people living with Epidermolysis Bullosa (EB). Whether you're already a part of our network or looking to start your journey with us, this page will guide you through everything you need to know about DI membership.
FOR CURRENT MEMBERS: PAY YOUR MEMBERSHIP FEE
As a valued DI member, your annual membership fee supports our collective mission to enhance care, share knowledge, and advocate for those living with EB around the world.
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Pay your membership fee easily via our secure online platform.
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Deadline for payment: 31 October 2025. Reminders will be sent via email.
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Amount to pay: The membership fee amount to pay for 2025 is based on the following scale below.
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Need assistance? Contact Megan, Communications and membership Coordinator, megan@debra-international.org
START A DEBRA GROUP IN YOUR COUNTRY
Interested in making a difference locally? Starting a DEBRA group is the first step toward joining the global movement for EB awareness, support, and care. Whether you're a parent, caregiver, healthcare professional, or advocate, you can make a real impact. DEBRA International will support you throughout the process of establishing a group that can one day become a full member of our global network.​​
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Download the Guide to setting up a DEBRA group and/or EB clinical service HERE for more details.
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What this guide is about
This document serves as a guide to setting up a DEBRA group and/or EB clinical services in countries/territories where there currently are none.
Who this guide is for
This guide is for anyone actively seeking to set up a DEBRA group and/or EB clinical services, whether this be in their country of residence or abroad.
Where the information in this guide comes from
The information in this guide primarily comes from first-hand accounts of those with experience of setting up a DEBRA group and/or EB clinical service.
How to use this guide
It is important to note that this document is written as a guide, not a manual. The authors’ intentions are to provide the user with general information on the steps to creating a non-profit organisation and/or health services accompanied by first-hand experiences of those who have already undergone this process. It is the hope of the authors that any user of this guide may be able to draw inspiration from the information and case studies provided to adapt to their local circumstances.
APPLY FOR MEMBERSHIP WITH DEBRA INTERNATIONAL
Already running an EB support group? Take the next step and become an official member of DEBRA International.
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Membership gives your group a stronger voice in the global EB community, access to valuable resources and networks, and the opportunity to contribute to the international strategy for better care, research, and advocacy.
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Why Become a Member of DI?
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Be Part of a Global Movement: Join a worldwide network of DEBRA groups working together to improve the lives of people with EB.
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Access Knowledge and Resources: Gain access to training materials, shared campaigns, medical guidelines, fundraising support, and more.
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Have a Say in the Future: As a member, your group will have voting rights at the Annual General Meeting and influence in DI’s strategic direction.
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Collaborate and Grow: Exchange ideas, best practices, and challenges with other DEBRA groups and professionals from around the world.
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Develop Your Group’s Capacity: Receive mentorship, leadership training, and support for your group’s development and sustainability.
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Still Have Questions?
We’re here to support you. Contact office@debra-international.org before submitting your application.
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Membership Types
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Full membership is open to all national EB support groups* that are legally constituted as a non-profit organisation under the laws of their own country and registered with the relevant supervising authority for non-profit organisations in that country.
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Associate membership is open to any national EB support group* that is not yet legally constituted as a non-profit organisation.
*A national EB support group's purpose and activities must be for the benefit of the EB patient community.​​