Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q=D_Qnr Since summer 2019, Dr Gudrun Salamon, researcher in the faculty of psychology at the Sigmund Freud University Vienna has been leading a research team of six people on the project of "Burdens and helpful aspects for achieving and maintaining quality of life with epidermolysis bullosa". In cooperation with DEBRA International, DEBRA Aus