Guideline objectives: to provide evidence based recommendations for the management of physiotherapy services for patients with EB; to provide a CPG for any physiotherapists that might encounter a patient with EB for the first time and provide them with resources on justifying improved mobility, flexibility and strengthening activities to improve cardiovascular involvement so that patients with EB can improve their quality of life; and to identify areas where there is lack of evidence and promote future physiotherapy research.
Target users: physiotherapists, people with EB and their caregivers, rehabilitation practitioners, allied health professionals, nurses, occupational therapists (OTs), physicians/medical doctors, physician assistants, psychomotor therapists, nurse practitioners, social workers, educational staff and employers of individuals with EB.
PHYSIOTHERAPY FOR EPIDERMOLYSIS BULLOSA: CLINICAL PRACTICE GUIDELINES
Published 2021 | Funded by debra of America
Topics covered in these guidelines include:
recommendations for the management of physiotherapy services for patients with EB
provide guidelines and resources for physiotherapists encountering a person with EB for the first time
identify areas where there is lack of evidence to promote future physiotherapy research
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Physiotherapy patient guides