JOIN THE TEAM

We're Hiring: Executive Director

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Location: Europe (Remote) with a preference for Spain; open to any location for the right candidate
Languages Required: English and preferably Spanish

Contract type: Full time, permanent 

Application Deadline: Friday, 22 August 2025 at 11:59 PM CET

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DEBRA International, the global patient alliance for people living with Epidermolysis Bullosa (EB), is seeking a passionate, results-oriented, and driven individual to serve as our next Executive Director.​

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We are looking for a hands-on, delivery-focused Executive Director who thrives in operational environments, builds strong teams and partnerships, and gets things done. This is not a figurehead or purely strategic role — we are seeking someone who is as comfortable rolling up their sleeves to run day-to-day operations as they are representing DEBRA International on the global stage. The Executive Director will take DEBRA International to a new level in a unique moment of scientific advancements, first therapies approval, rare diseases international policies progress and new opportunities.

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Who We’re Looking For

We are seeking a candidate who is:

• Fluent in English and Spanish

• Based in Europe

• Motivated to make a meaningful impact in the rare disease community

• An experienced and strategic leader, ready to inspire and drive global change

 

If you are passionate about non-profit leadership, international collaboration, and working at the intersection of healthcare and advocacy, we want to hear from you.

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Why Join Us?

• Lead a committed and mission-driven team

• Be part of a global network supporting people with EB

• Shape the future direction of a trusted voice in rare disease advocacy

• Work in a flexible, remote role with meaningful impact​​

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