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IGNACIA FUENTES

Vice-Secretary

Ignacia is based in Santiago, Chile and joined DEBRA International in September 2018. Ignacia studied biochemistry in Chile, did her PhD in genetics in Germany, and returned to Chile to work in EB in 2013. Ignacia loves travelling. Thus, she has been a visiting scientist to learn about EB in many EB centres worldwide, such as the EB-Haus Austria, Thomas Jefferson University USA, and others.

Ignacia is currently the Research Director of DEBRA Chile and leads a great team of people working for EB patients in different aspects of the disease, such as understanding the genetics and physiology of EB, participating in clinical trials on EB, and providing molecular diagnosis to EB patients in Chile. Although Ignacia has no personal connection to EB, she is committed to support with her knowledge and experience on EB research, DEBRA Chile, and EB patients worldwide.