Was Ist EB? booklet now available to download in German
The popular booklet 'What Is EB/Was Ist EB?' is now available in it's newest translation, German, and free to download.
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NEWS
- Jan 10
NEW! Neonatal Care in EB: a Clinical Practice Guideline now published
It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options
- Dec 20, 2023
Chiesi Global Rare Diseases receives FDA approval for FILSUVEZ® topical gel for the treatment of EB
FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...
- May 1, 2023
New clinical trials online tool goes live
EB Research Network has created a new online tool to make tracking of clinical trials easier
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