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New clinical trials online tool goes live

EB Research Network has created a new online tool to make tracking of clinical trials easier.


The approval of Amryt Pharma’s Filsuvez - the world's first EB drug - in 2022 boosts other clinical trials for EB. The international trial registries show over 40 active clinical trials for EB worldwide. The EB Research Network has created a new online tool to make tracking them easier.


Online clinical trials tool

The main aim of the tool is to provide a database with a pooled overview of all studies relevant to EB. It combines studies from the following registries: Clinicaltrials.gov, the EU Clinical Trials Registry, the International Clinical Trials Registry Platform (ICTRP), and the UMIN Clinical Trials Registry.


Note that they cannot guarantee the completeness of the lists, even though they are updated regularly. They are happy to support the maintenance of the database - information about missing studies or updates is very welcome. Thank you very much for your support. With the new database for clinical trials, they hope to provide the EB community with an interesting online tool. The filter and search functions are particularly exciting.



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