Video highlights of DEBRA Ukraine's activities supporting its members during war time
The video demonstrates the sterling work by the group to support its members and EB patient community in times of extreme adversity.
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NEWS
EURORDIS Black Pearl Awards 2023: United for Ukrainians Living with a Rare Disease
Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.
Maria Korosta's letter to us all
Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)
New shipment of humanitarian aid arrives in Ukraine
On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.
Ukraine - a mother's note of hardship and hope
Ukraine - a mother's note of hardship and hope
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