NEWS

The 4th Debra Brasil Congress held in Belo Horizonte marked a significant milestone in the awareness and research of Epidermolysis Bullosa.

The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.

UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...

DEBRA UK held a reception with Scottish Parliament as the latest step in their campaign to raise awareness & the need for government support

Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.

It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.

From appealing for greater healthcare professional presence and attending the paediatric palliative care conference to 31 family visits.

ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium