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NEWS
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...
Apr 22, 2021
People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge
With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...
Mar 13, 2021
Meet the team behind the creation of the supporting sexuality for people with EB CPG
Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.
Jan 14, 2021
NEW! Supporting sexuality for people living with EB CPG now published
The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!
Jan 8, 2021
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