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NEW! Physiotherapy for EB: clinical practice guidelines

Writer's picture: DEBRA InternationalDEBRA International

We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the Orphanet Journal of Rare Diseases!


The guidelines have been created to provide evidence based interventions and best clinical practices for the physiotherapy management of individuals living with EB. A survey was carried out within the international EB Community and six priority areas to address in the guidelines were identified:

  1. attaining developmental motor milestones

  2. identifying safe and functional mobility in the natural environment

  3. encouraging ambulation endurance (the action of moving about, walking)

  4. supporting safe ability to bear weight

  5. improving access to physiotherapy services, and

  6. optimising interaction with the community.

We would like to congratulate the clinicians, carers, and individuals living with EB who formed the guideline development team on their achievement and also thank everyone who contributed to the work including the reviewers and those who completed the initial survey.


It is a great resource, which will help many people living with EB around the world. The guidelines, funded by debra of America are available to download for FREE here: https://www.debra-international.org/physiotherapy-cpg


COMING SOON! The opportunity for you to provide your experiences of physiotherapy for inclusion in the patient versions of these guidelines!


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© 2023 DEBRA International. All rights reserved. Disclaimer: any and all medical information provided by DEBRA International on this website is for informational purposes only. Information is not intended to substitute the care and guidance given by a qualified physician or other allied healthcare professional. Always seek the advice of your physician prior to starting any medications or treatment regimens. DEBRA International does not endorse any drugs, tests, or treatments that we may report.

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