NEWS

EB was brought to the heart of European decision-making during a dedicated event at the European Parliament for Rare Disease Day 2026.

For Rare Disease Day 2026, Debra Ireland is running a national advocacy campaign focused on a very practical issue affecting people living with EB: access to disability parking.

On Rare Disease Day 2025, DEBRA Egypt emphasize their commitment to managing around 400 cases of EB and offering essential medical support.

DEBRA Croatia marks Rare Disease Day with three new workshops for policy makers and students.

DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.