Jan 10NEW! Neonatal Care in EB: a Clinical Practice Guideline now publishedIt highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options
Feb 15, 2023In memoriam: Lisa BrainsIt is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away
Oct 7, 2021NEW! Physiotherapy for EB: clinical practice guidelinesWe are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...
Jan 14, 2021Meet the team behind the creation of the supporting sexuality for people with EB CPGEvery CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.
Jan 8, 2021NEW! Supporting sexuality for people living with EB CPG now publishedThe "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!