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NEWS
DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EB
The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.
Jan 31, 2024
DEBRA Spain's work in funding research, international collaboration, and EB healthcare
DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.
Aug 22, 2023
DEBRA Spain works to ensure families receive the best possible level of care
From appealing for greater healthcare professional presence and attending the paediatric palliative care conference to 31 family visits.
Jun 1, 2023
DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
Jan 30, 2023
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
May 21, 2021
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...
Apr 23, 2021
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