Jan 31DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EBThe COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.
Aug 22, 2023DEBRA Spain's work in funding research, international collaboration, and EB healthcareDEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.
Jun 1, 2023DEBRA Spain works to ensure families receive the best possible level of careFrom appealing for greater healthcare professional presence and attending the paediatric palliative care conference to 31 family visits.
Jan 30, 2023DEBRA Mexico's 1st EB Health WorkshopDEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
May 21, 2021Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare CommonsSesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Apr 23, 2021Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...