NEWS

DEBRA International and GlobalSkin Symposium

The event gave clinical, research, and industry updates on EB, successful collaborations with DEBRA, and building impactful patient groups.

Prizes awarded to DEBRA representatives at GlobalSkin Conference 2023 ELEVATE

Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.

DEBRA International attends GlobalSkin Conference 2023 ELEVATE

It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.

Video highlights of DEBRA Ukraine's activities supporting its members during war time

The video demonstrates the sterling work by the group to support its members and EB patient community in times of extreme adversity.

DEBRA International attends the 2023 EWMA Conference

DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai

In memoriam: Lisa Brains

It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away

Maria Korosta's letter to us all

Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)

New shipment of humanitarian aid arrives in Ukraine

On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.

DEBRA Mexico's 1st EB Health Workshop

DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,

Ukraine - a mother's note of hardship and hope

We welcome DEBRA South Africa as one of our newest member groups

DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...

First-ever EB meeting held in Bangkok, Thailand

Ritu Jain, DEBRA International President travelled to Thailand to take part in the first-ever EB meeting, which was held with the support...

NEW! Hand surgery and hand therapy CPG for EB now published

We are delighted to announce that the "Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa" has been...

NEW! Physiotherapy for EB: clinical practice guidelines

We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...

Take part in an international research study on burden and resources in EB - online survey

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy

In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...

DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events

DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...