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NEWS


DEBRA International at the 15th World Congress of Pediatric Dermatology in Buenos Aires
DEBRA International joined the 15th WCPD in Buenos Aires to raise EB awareness, share resources, and connect with global dermatology professionals and partners.
2 days ago


New EB patient organisation in Bulgaria
EB DEBRA Bulgaria is new a patient-led organisation and member of DEBRA International dedicated to supporting those affected by EB through access to therapies, advocacy, and collaboration across healthcare, government, and industry.
2 days ago


Abeona Therapeutics Inc receives FDA approval for ZEVASKYNâ„¢ cell-based gene therapy
The FDA has approved ZEVASKYNâ„¢ (prademagene zamikeracel), the third therapy available for individuals with epidermolysis bullosa (EB)
Apr 29


New DEBRA International Zoom Backgrounds Available Now – Download for Free!
DEBRA International are pleased to share a new collection of DEBRA International Zoom backgrounds, free for all to use.
Apr 23


EMA Recommends Approval of Vyjuvek
On February 28, 2025, the EMA has recommended granting a marketing authorisation in the European Union for Vyjuvek to treat DEB.
Feb 28


New EB patient organization in Jordan
Butterfly Wings Organisation—DEBRA Jordan is the premier charity organisation in Jordan dedicated to supporting people with EB.
Feb 20


Support the WHA 2025 Resolution on Skin Diseases!
The World Health Assembly will meet in May 2025 to adopt a groundbreaking resolution to prioritize skin health as a global health issue.
Feb 20


New RDI-Lancet Commission on Rare Diseases aims to drive global impact
Read more about the new initiative dedicated to improving the lives of Persons Living with a Rare Disease (PLWRD) globally.
Feb 11


A landmark moment for the WHA Resolution on rare diseases
On February 4, 2025, RDI officially submitted the #Resolution4Rare for consideration by the World Health Assembly (WHA) Executive Board.
Feb 11


President's Report 2024
As 2024 draws to a close, DEBRA International reflects on a year of remarkable achievements and progress its support to those affected by EB
Jan 9


DIYC at the DEBRA Care Conference in Atlanta
An update on the DEBRA International Youth Council (DIYC) attendance at the DEBRA Care Conference.
Sep 25, 2024


The European Society for Dermatological Research (ESDR) Review
ESDR was held in Lisbon at the beginning of September. DEBRA Spain represented DEBRA International and held a talk about EB.
Sep 25, 2024


JLA study: A giant global thank you from DEBRA UK
A summary of the JLA study results, along with a big thank you from DEBRA UK for your participation.
Sep 13, 2024


DEBRA International President Ritu Jain elected as new RDI Council Officer
Rare Diseases International announced the results of the recent RDI Council elections, with DI president Ritu Jain elected as Secretary.
Sep 2, 2024


DEBRA International attends the 2024 EWMA Conference
DEBRA International held two sessions and a booth at the 2024 EWMA in London.
Jul 25, 2024


Take part in new BUR-EB project to improve EB care in Europe
BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.
Jul 15, 2024


DEBRA International Youth Council
Introducing the DEBRA International Youth Council! Find out about their mission, their vision and meet their team.
Mar 6, 2024


DEBRA groups attend ERN Skin's Patient Education Program and Scientific Meeting
ERN Skin held a Patient Education Program and Scientific Meeting for its members. 80 participants enrolled in the two day event.
Feb 28, 2024


DEBRA International celebrates EURORDIS 2024 Members Award win at the Black Pearl Awards
DEBRA International wins the EURORDIS 2024 Members Award at the Black Pearl Awards
Feb 21, 2024


Was Ist EB? booklet now available to download in German
The popular booklet 'What Is EB/Was Ist EB?' is now available in it's newest translation, German, and free to download.
Feb 8, 2024
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