DEBRA International attends the 2023 EWMA Conference
DEBRA International attends the 2023 EWMA Conference
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DEBRA International
- Mar 7
- 1 min
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
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DEBRA International
- Feb 15
- 1 min
In memoriam: Lisa Brains
It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away
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DEBRA International
- Feb 10
- 2 min
Maria Korosta's letter to us all
Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)
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DEBRA International
- Feb 8
- 1 min
New shipment of humanitarian aid arrives in Ukraine
On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.
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DEBRA International
- Jan 30
- 1 min
DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
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DEBRA International
- Jan 25
- 2 min
Ukraine - a mother's note of hardship and hope
Ukraine - a mother's note of hardship and hope
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DEBRA International
- Dec 21, 2022
- 1 min
We welcome DEBRA South Africa as one of our newest member groups
DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...
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DEBRA International
- Dec 21, 2022
- 2 min
First-ever EB meeting held in Bangkok, Thailand
Ritu Jain, DEBRA International President travelled to Thailand to take part in the first-ever EB meeting, which was held with the support...
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DEBRA International
- Nov 14, 2022
- 3 min
NEW! Hand surgery and hand therapy CPG for EB now published
We are delighted to announce that the "Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa" has been...
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DEBRA International
- Oct 7, 2021
- 1 min
NEW! Physiotherapy for EB: clinical practice guidelines
We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...
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DEBRA International
- May 7, 2021
- 2 min
Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...
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DEBRA International
- Feb 1, 2021
- 2 min
DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy
In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...
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DEBRA International
- Feb 1, 2021
- 3 min
DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events
DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...
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