EB Awareness Week 2025: Sharing Patient Testimonies

As part of EB Awareness Week 2025, DEBRA International is proud to share a powerful video with EB advocates from around the world highlighting the realities of living with Epidermolysis Bullosa (EB).

In this short film, we hear directly from those affected by EB and their families, who speak with honesty and courage about the daily challenges, the strength it takes to care for wounds, and the hope that drives them forward. Their voices serves as a poignant reminder why awareness, understanding, and support are so vital.

At DEBRA International, our mission is to ensure that no one faces EB alone, by connecting communities, advancing research, and advocating for better care worldwide.

Watch the video, share it, and help us spread the word this EB Awareness Week: together, we can make a difference for everyone living with EB.

This video is made with special thanks to the support of Chiesi Global Rare Diseases.