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NEWS


Mar 10, 2023
DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities
An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.


Mar 8, 2023
Celebration of the 15th World Day of Rare Diseases in Colombia
On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.


Mar 7, 2023
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai


Feb 28, 2023
Nada Ashraf from Egypt shares her story this Rare Disease Day
Nada Ashraf from Egypt shares her story this Rare Disease Day


Feb 15, 2023
In memoriam: Lisa Brains
It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away


Feb 10, 2023
Maria Korosta's letter to us all
Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)


Jan 31, 2023
In memoriam: Catina Bernardis
In memoriam: Catina Bernardis


Jan 30, 2023
DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,

Jan 25, 2023
Ukraine - a mother's note of hardship and hope
Ukraine - a mother's note of hardship and hope

Jan 23, 2023
DEBRA Germany introduces a new video on EB wound care
DEBRA Germany introduces a new video on EB wound care.


Jan 20, 2023
DEBRA UK raises a phenomenal £140,000
DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!


Jan 10, 2023
DEBRA Indonesia's theme for EB Awareness Week 2022
DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia

Jan 6, 2023
Remembering Prof Jouni Uitto
It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.

May 20, 2021
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

May 7, 2021
Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

Apr 22, 2021
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...


Mar 13, 2021
People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge
With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...


Mar 5, 2021
We welcome DEBRA Belarus as one of our three new member groups
DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...


Feb 1, 2021
DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy
In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...


Feb 1, 2021
We welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groups
DEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...
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