With the publication of the congress supplement in einstein (São Paulo), the effort from EB Congress 2026 has now been captured in a lasting, accessible format.

EB was brought to the heart of European decision-making during a dedicated event at the European Parliament for Rare Disease Day 2026.

DEBRA Egypt attended No to Violence Against Women campaign, highlighting the importance of protecting and supporting women, especially girls and women with disabilities and those living with chronic and rare diseases such as Epidermolysis Bullosa (EB).