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Join date: Jan 8, 2021
Posts (140)
Oct 30, 2025 ∙ 1 min
EB Awareness Week 2025: Sharing Patient Testimonies
In April 2025, EB advocates from all over the world came to Prague to participate in the GlobalSkin conference. We sat with them and listened to their story....
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Oct 2, 2025 ∙ 1 min
DEBRA International and DEBRA Research Travel Grant for EB2026 Brazil Congress
This grant is targeted at supporting representatives (patients, clinicians, researchers) who would otherwise not be able to attend and in turn, to benefit the local/regional EB-community.
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Sep 19, 2025 ∙ 2 min
Japan Receives Approval of Krystal Biotech's VYJUVEK®
Krystal Biotech’s Vyjuvek has been approved by Japan’s Ministry of Health, Labour and Welfare for the treatment of wounds caused by dystrophic epidermolysis bullosa (DEB). It is the first genetic therapy authorised in Japan for DEB.
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