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Join date: Jan 8, 2021
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May 28, 2026 ∙ 1 min
Photo Exhibition in Abashiri raises awareness of Epidermolysis Bullosa in Japan
From April 5 to April 12, a photo exhibition focusing on epidermolysis bullosa (EB) was held at the Abashiri City Museum of Art in Hokkaido, Japan.
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May 26, 2026 ∙ 3 min
DEBRA Groups represented at Rare Women International Forum
DEBRA International members joined global advocates at the Rare Women International Forum in Moscow, strengthening collaboration across the rare disease community.
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May 22, 2026 ∙ 1 min
BUR-EB Project Launches Multilingual Educational Resources on EB
The BUR-EB project has published a new collection of educational materials on EB, now available in Spanish, English, Italian, French, Hungarian, Bulgarian, and German.
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