NEW! Physiotherapy for EB: clinical practice guidelines
We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...
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DEBRA International
- May 20, 2021
- 1 min
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
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DEBRA International
- May 7, 2021
- 2 min
Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...
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DEBRA International
- Apr 22, 2021
- 2 min
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...
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DEBRA International
- Mar 13, 2021
- 2 min
People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge
With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...
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DEBRA International
- Jan 14, 2021
- 3 min
Meet the team behind the creation of the supporting sexuality for people with EB CPG
Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.
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DEBRA International
- Jan 8, 2021
- 1 min
NEW! Supporting sexuality for people living with EB CPG now published
The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!
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