US FDA gives its first approval for new treatment for dystrophic EB
Krystal Biotech has received FDA approval for the first-ever redosable gene therapy, VYJUVEKâ„¢.
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DEBRA International
- May 19
- 1 min
DEBRA UK completes its largest ever EB patient insight study
DEBRA UK completes EB patient insight study to better understand how EB impacts a patient's life and the type of care they receive.
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DEBRA International
- May 17
- 1 min
EB Clinet Online Seminar: Nutritional Needs & Anemia in Adults with EB
The next EB Clinet Online Seminar is dedicated to the topic of 'Nutritional Needs and Anemia in Adults with EB'
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DEBRA International
- May 5
- 1 min
DEBRA International attends the 2023 EWMA Conference
DEBRA International attends the 2023 EWMA Conference
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DEBRA International
- May 4
- 2 min
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
ERN Skin meeting held in Paris attended by DEBRA representatives from Ireland, Croatia, and Belgium
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DEBRA International
- Mar 14
- 1 min
DEBRA Colombia attends the 33rd National Congress of Dermatology
DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.
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DEBRA International
- Mar 10
- 1 min
DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities
An EB Expert Panel was launched by DEBRA Ireland to help shape their support and research priorities.
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DEBRA International
- Mar 1
- 1 min
First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico
The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.
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DEBRA International
- Feb 24
- 1 min
DEBRA UK commissions EB patient insight study
DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.
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DEBRA International
- Feb 21
- 1 min
Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!
We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards
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DEBRA International
- Feb 15
- 1 min
In memoriam: Lisa Brains
It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away
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DEBRA International
- Feb 8
- 1 min
New shipment of humanitarian aid arrives in Ukraine
On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.
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DEBRA International
- Jan 31
- 1 min
In memoriam: Catina Bernardis
In memoriam: Catina Bernardis
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DEBRA International
- Jan 30
- 1 min
DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
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DEBRA International
- Jan 23
- 1 min
DEBRA Germany introduces a new video on EB wound care
DEBRA Germany introduces a new video on EB wound care.
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DEBRA International
- Nov 14, 2022
- 3 min
NEW! Hand surgery and hand therapy CPG for EB now published
We are delighted to announce that the "Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa" has been...
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