Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...

With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...

Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.

The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!