top of page
NEWS
Search
DEBRA International
- Jan 30
- 1 min
DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
9 views0 comments
DEBRA International
- Jan 23
- 1 min
DEBRA Germany introduces a new video on EB wound care
DEBRA Germany introduces a new video on EB wound care.
2 views0 comments
DEBRA International
- Nov 14, 2022
- 3 min
NEW! Hand surgery and hand therapy CPG for EB now published
We are delighted to announce that the "Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa" has been...
79 views0 comments
DEBRA International
- Oct 7, 2021
- 1 min
NEW! Physiotherapy for EB: clinical practice guidelines
We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...
68 views0 comments
DEBRA International
- May 20, 2021
- 1 min
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
140 views0 comments
DEBRA International
- May 7, 2021
- 2 min
Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...
384 views0 comments
DEBRA International
- Apr 22, 2021
- 2 min
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...
104 views0 comments
DEBRA International
- Mar 13, 2021
- 2 min
People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge
With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...
212 views1 comment
DEBRA International
- Jan 14, 2021
- 3 min
Meet the team behind the creation of the supporting sexuality for people with EB CPG
Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.
182 views0 comments
DEBRA International
- Jan 8, 2021
- 1 min
NEW! Supporting sexuality for people living with EB CPG now published
The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!
80 views0 comments
bottom of page