NEW! Management of Oesophageal Strictures in Inherited EB: a Clinical Practice Guideline now published

We are pleased to announce the publication of the “Management of Oesophageal Strictures in Inherited Epidermolysis Bullosa: A Clinical Practice Guideline”.

This guideline provides healthcare professionals and caregivers with evidence-based recommendations for the diagnosis, prevention, and treatment of oesophageal strictures in individuals with inherited EB. Developed by an international multidisciplinary panel, the guideline aims to improve patient outcomes and quality of life.

The guideline covers essential aspects of care, including diagnostic procedures, preventive measures, and treatment strategies. It is designed to support clinical decision-making and enhance communication between healthcare providers and EB specialist teams.

Please note: The final typeset article will be published in due course.

We extend our congratulations to the entire guideline development team, panel members and reviewers for their dedication and hard work, especially leads Paola De Angelis and May El Hachem. We also thank DEBRA Ireland for funding the publication of this important resource. The CPG is available to download for FREE by clicking the button below

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