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DEBRA France holds 4th annual EB professionals meeting in Paris

On 9 November, the DEBRA France Association organised its 4th meeting of epidermolysis bullosa professionals at the Necker Hospital in Paris.

Attendees of the meeting can be seen gathered in a small lecture hall

This rare genetic disease requires multidisciplinary care, with medical (dermatologist, psychiatrist, dentist, gastroenterologist, ophthalmologist, ENT specialist, stomatologist, geneticist, etc.) and paramedical (psychologist, dietician, nurse, physiotherapist, occupational therapist, socio-educational team, etc.) skills.


These different professionals, from the hospital or private practice environment, do not always have the opportunity to exchange ideas and meet face-to-face. That's why DEBRA has been organising these meetings every year for 4 years now.


This year, 3 main themes were discussed:

- Pain management (remember that EB is undoubtedly one of the most painful diseases)

- Nursing care at home

- Oral disorders


35 were present and 15 followed by video conference.


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