Nada Ashraf from Egypt shares her story this Rare Disease Day
Nada Ashraf from Egypt shares her story this Rare Disease Day
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DEBRA International
- Feb 24
- 1 min
DEBRA UK commissions EB patient insight study
DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.
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DEBRA International
- Feb 21
- 1 min
Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!
We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards
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DEBRA International
- Feb 15
- 1 min
In memoriam: Lisa Brains
It is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away
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DEBRA International
- Feb 10
- 2 min
Maria Korosta's letter to us all
Maria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)
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DEBRA International
- Feb 8
- 1 min
New shipment of humanitarian aid arrives in Ukraine
On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.
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DEBRA International
- Jan 30
- 1 min
DEBRA Mexico's 1st EB Health Workshop
DEBRA Mexico's 1st EB Health Workshop. This workshop reflects the commitment of the global EB community to work together to promote health,
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DEBRA International
- Jan 27
- 2 min
DEBRA Egypt celebrates EB Awareness Week 2022 on the Nile with EB patients and their families
DEBRA Egypt celebrates EB Awareness Week on the Nile with EB patients and their families.
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DEBRA International
- Jan 25
- 2 min
Ukraine - a mother's note of hardship and hope
Ukraine - a mother's note of hardship and hope
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DEBRA International
- Jan 23
- 1 min
DEBRA Germany introduces a new video on EB wound care
DEBRA Germany introduces a new video on EB wound care.
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DEBRA International
- Jan 20
- 1 min
DEBRA UK raises a phenomenal £140,000
DEBRA UK raises a phenomenal £140,000 at its annual Fight Night event!
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DEBRA International
- Jan 17
- 1 min
EB Awareness Week 2022 in Croatia
EB Awareness Week 2022 in Croatia was full of various activities.
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DEBRA International
- Jan 10
- 2 min
DEBRA Indonesia's theme for EB Awareness Week 2022
DEBRA Indonesia celebrates EB Awareness Week 2022 : get to know EB, Butterfly Children, and the EB Community in Indonesia
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DEBRA International
- Jan 6
- 1 min
Remembering Prof Jouni Uitto
It is with a heavy heart that we share the news that a great legend in dermatology, Dr Jouni Uitto, passed away recently.
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DEBRA International
- Dec 21, 2022
- 1 min
We welcome DEBRA South Africa as one of our newest member groups
DEBRA International is delighted to welcome DEBRA South Africa as one of its newest member groups. DEBRA South Africa started in 2020...
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DEBRA International
- Dec 21, 2022
- 1 min
Taking DEBRA to new heights
During EB Awareness Week 2022, DEBRA International followed the endeavours of Dr Niraj Parajuli, a dermatologist from the National...
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DEBRA International
- Dec 21, 2022
- 2 min
First-ever EB meeting held in Bangkok, Thailand
Ritu Jain, DEBRA International President travelled to Thailand to take part in the first-ever EB meeting, which was held with the support...
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DEBRA International
- Nov 14, 2022
- 3 min
NEW! Hand surgery and hand therapy CPG for EB now published
We are delighted to announce that the "Hand surgery and hand therapy clinical practice guideline for epidermolysis bullosa" has been...
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DEBRA International
- Oct 19, 2022
- 1 min
Epidemiology, pathological, and genetic characteristics of EB in New Zealand
Grant round: May 2018 Grant type: Project grant Grant recipient: DEBRA New Zealand Grant amount awarded: € 2,500.00 This grant supported...
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DEBRA International
- Oct 19, 2022