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NEWS

Dec 21, 2023
Last call to get patients involved in the GRIDD study
The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.


Dec 20, 2023
DEBRA UK's grant call for 2024
UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...


Dec 20, 2023
Chiesi Global Rare Diseases receives FDA approval for FILSUVEZ® topical gel for the treatment of EB
FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...

Dec 18, 2023
LifeArc and DEBRA Austria's £2.5m funding call update
In 2023, DEBRA Austria/ EB Resnet launched a £2.5M funded joint call with partners LifeArc for research proposals targeting repurposing...


Dec 18, 2023
DEBRA France holds 4th annual EB professionals meeting in Paris
The DEBRA France Association organized its 4th annual meeting of epidermolysis bullosa professionals at the Necker Hospital in Paris.


Dec 18, 2023
DEBRA UK goes to Scottish Parliament
DEBRA UK held a reception with Scottish Parliament as the latest step in their campaign to raise awareness & the need for government support


Dec 15, 2023
New international research projects from DEBRA Austria and EB Resnet
Contracts for two new research projects have been successfully issued by EB Resnet 2022.

Dec 14, 2023
New EB patient organization in Bulgaria
Association Epidermolysis Bullosa is a new Bulgarian patient organization, created in July 2023Â by patients and parents of EB children


Aug 22, 2023
DEBRA Colombia's 29th Patient Gathering Event
The DEBRA Colombia Foundation held a note-worthy Patient Gathering Event in Bogota from May 5th to 7th for patients with EB


Aug 21, 2023
Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL
DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients


Aug 21, 2023
DEBRA Spain's work in funding research, international collaboration, and EB healthcare
DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.


Aug 15, 2023
World Patient Alliance (WPA) Asia Pacific Regional Meeting 2023
Registration is now open for the WPA Asia Pacific Regional Meeting being held from 4th to 5th November 2023 in Dubai, UAE.


Aug 13, 2023
DEBRA UK announces its first approved drug repurposing clinical trial
This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex


Aug 1, 2023
DEBRA International and GlobalSkin Symposium
The event gave clinical, research, and industry updates on EB, successful collaborations with DEBRA, and building impactful patient groups.


Jul 14, 2023
LifeArc and DEBRA Austria launch £2.5m funding call for repurposing therapies for EB
This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.


Jun 27, 2023
DEBRA France hosts its annual meeting of families in Paris
On April 1st, DEBRA France hosted its annual meeting in Paris. 30 families came together for the first time since the COVID-19 pandemic.


Jun 26, 2023
Celebrating two years of support in Indonesia: a recap of DEBRA Indonesia's events
The group has held several online and in-person events to cater for its EB patient and healthcare communities in the archipelagic country.


Jun 26, 2023
Charity run funds raised for DEBRA Germany
DEBRA Germany was one of four charitable causes that received funds raised from a charity run held on June 17th by the Lions Club Bidenkopf.

Jun 26, 2023
DEBRA South Africa takes part in Dermatology Nursing Workshop
The nurses were educated on EB and how to take care of babies' wounds with the resources available to them in their respective centres.


Jun 26, 2023
Funds raised for DEBRA Colombia through the HEELP Program
Heel Colombia has set forward a plan to rewrite the future with the purpose of transforming lives through different projects.

Jun 25, 2023
DEBRA Ireland has a new look
Debra Ireland have been working hard to refresh its look to make it more relevant, accessible and in line with what they want to achieve.


Jun 24, 2023
Empowering girls in Egypt
The objective of the foundation is to encourage EB patients interested in drawing and learning crafts.


Jun 22, 2023
Prizes awarded to DEBRA representatives at GlobalSkin Conference 2023 ELEVATE
Two DEBRA reps were recipients of the Patient Leader Awards honoring leadership of GlobalSkin members at local, regional, and global levels.


Jun 22, 2023
DEBRA International attends GlobalSkin Conference 2023 ELEVATE
It proved a wonderful opportunity for various DEBRA/EB delegates to connect, strategise, and discuss priorities for their communities.
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