NEWS

People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge

With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...

We welcome DEBRA Belarus as one of our three new member groups

DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...

DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy

In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...

DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events

DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...

We welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groups

DEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...

Meet the team behind the creation of the supporting sexuality for people with EB CPG

Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.

NEW! Supporting sexuality for people living with EB CPG now published

The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!