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NEWS

Apr 8, 2022
DEBRA International had a successful webinar on the Pregnancy, Childbirth and Aftercare in EB.
On 23 February 2022, DEBRA International had a webinar on the Pregnancy, Childbirth and Aftercare in epidermolysis bullosa...


Feb 21, 2022
EB Awareness Month 2021 activity report!
DEBRA International was delighted to support DEBRA Indonesia team in holding the EB Awareness Month October 2021. In October 2021, EB...


Feb 21, 2022
Art Exhibition for EB children in Egypt "BUTTEFLIES CHALLENGE"
DEBRA International is delighted to announce the First Art exhibition for EB children in Egypt and worldwide in cooperation with Yasmin...


Feb 8, 2022
The UN official adoption
On the 16 December 2021, the UN General Assembly has formally adopted the UN Resolution on Addressing the Challenges of Persons Living...


Oct 7, 2021
NEW! Physiotherapy for EB: clinical practice guidelines
We are delighted to announce the publication of the "Physiotherapy for epidermolysis bullosa: clinical practice guidelines" in the...

May 20, 2021
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons
Sesión virtual para pacientes y familias dedicada al proyecto sobre EB de Rare Commons

May 7, 2021
Take part in an international research study on burden and resources in EB - online survey
Take the survey in English: https://survey.sfu.ac.at/EB2021/?q=E_Qnr Take the online survey in German: https://survey.sfu.ac.at/EB2021/?q...

Apr 22, 2021
Únete a Rare Commons para compartir tus experiencias y ayudar a mejorar el conocimiento de la EB
Rare Commons es un proyecto de investigación del Hospital Sant Joan de Déu de Barcelona que se centra en el estudio biomédico de las...


Mar 13, 2021
People with EB in Brazil have the opportunity to access genetic sequencing tests free of charge
With 28th February 2021 marking Rare Disease Day, DEBRA Brasil and Illumina have joined forces to launch a pioneering and high impact...


Mar 5, 2021
We welcome DEBRA Belarus as one of our three new member groups
DEBRA International is delighted to welcome DEBRA Belarus as one of its newest member groups. The Republican Public Association for Aid...


Feb 1, 2021
DEBRA Bosnia and Herzegovina launches picture book, Butterfly Boy
In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...


Feb 1, 2021
DEBRA International supports DEBRA Pakistan's first ever EB Awareness Week events
DEBRA International, through its EB Without Borders programme, was delighted to support the DEBRA Pakistan team in holding their first EB...


Feb 1, 2021
We welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of our three new member groups
DEBRA International is delighted to welcome the Yasmin El Samra Foundation - DEBRA Egypt as one of its newest member groups. My name is...

Jan 14, 2021
Meet the team behind the creation of the supporting sexuality for people with EB CPG
Every CPG published is the result of 18-24 months of hard work and dedication by a volunteer panel of clinical and patient experts.


Jan 8, 2021
NEW! Supporting sexuality for people living with EB CPG now published
The "Supporting sexuality for people living with EB: clinical practice guidelines" have been published!
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