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NEWS
DEBRA International Roundtable of Companies first in-person group meeting
On Tuesday 12th December 2023, the DEBRA International's inaugural Roundtable of Companies held the first in-person group meeting in London.
Dec 21, 2023
Last call to get patients involved in the GRIDD study
The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.
Dec 21, 2023
DEBRA UK's grant call for 2024
UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...
Dec 20, 2023
Chiesi Global Rare Diseases receives FDA approval for FILSUVEZ® topical gel for the treatment of EB
FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...
Dec 20, 2023
LifeArc and DEBRA Austria's £2.5m funding call update
In 2023, DEBRA Austria/ EB Resnet launched a £2.5M funded joint call with partners LifeArc for research proposals targeting repurposing...
Dec 18, 2023
DEBRA France holds 4th annual EB professionals meeting in Paris
The DEBRA France Association organized its 4th annual meeting of epidermolysis bullosa professionals at the Necker Hospital in Paris.
Dec 18, 2023
DEBRA UK goes to Scottish Parliament
DEBRA UK held a reception with Scottish Parliament as the latest step in their campaign to raise awareness & the need for government support
Dec 18, 2023
New international research projects from DEBRA Austria and EB Resnet
Contracts for two new research projects have been successfully issued by EB Resnet 2022.
Dec 15, 2023
New EB patient organization in Bulgaria
Association Epidermolysis Bullosa is a new Bulgarian patient organization, created in July 2023 by patients and parents of EB children
Dec 14, 2023
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