Mar 1, 2023First health workshop "Salud sin Fronteras" ("Health without Borders") held in MexicoThe free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.
Feb 28, 2023Nada Ashraf from Egypt shares her story this Rare Disease DayNada Ashraf from Egypt shares her story this Rare Disease Day
Feb 28, 2023Your members' chance to participate in “The story of my skin” Art ContestThe Art Contest called “The story of my skin” started on 28th February during International Rare Disease Day and will finish on 30th May.
Feb 24, 2023DEBRA UK commissions EB patient insight studyDEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.
Feb 21, 2023Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards
Feb 15, 2023In memoriam: Lisa BrainsIt is with a heavy heart that we share the news that Lisa Brains, born with recessive dystrophic EB from Melbourne, Australia passed away
Feb 10, 2023Maria Korosta's letter to us allMaria Korosta, a paramedic living in Korost, a village in Rivne Pblast, Ukraine with her 2 boys Maksym (13) and Mykola (8)