NEWS

A summary of the JLA study results, along with a big thank you from DEBRA UK for your participation.

BUR-EB's new study aims to assess patients’ quality of life and the financial burden of EB on their families.

DI has received the EURODIS Member Award for the support of the rare disease community affected by conflicts and natural disasters.

The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.

UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...

FILSUVEZ topical gel is indicated for the treatment of partial thickness wounds in patients 6 months and older with Junctional and...

In 2023, DEBRA Austria/ EB Resnet launched a £2.5M funded joint call with partners LifeArc for research proposals targeting repurposing...

Contracts for two new research projects have been successfully issued by EB Resnet 2022.

On 8th February 2023, DEBRA Ukraine received 200 kg worth of humanitarian aid for 60 EB patients living in the country.

In 2019, DEBRA International was delighted to be able to support its member group, DEBRA BiH with a grant for their project to create and...