DEBRA Italy: Education, Information and Emotional Support

Over the last year and in recent months, Debra Italy has continued to strengthen its support for the EB community, responding to both the practical and emotional needs of people living with EB and their families.

A key part of this work has been the development of a series of high-quality educational webinars providing valuable insights and expert perspectives.

Designed for patients, caregivers, and healthcare professionals, these online events offer practical guidance on both the medical and everyday aspects of living with EB, while also creating meaningful opportunities for dialogue and connection.

Alongside these initiatives, DEBRA Italy has reinforced its commitment to psychological support, recognising the significant psychological burden that EB places on patients and their families.

Living with a chronic and rare condition can deeply affect emotional wellbeing, making access to mental health support an essential part of care. Building on a psychological support initiative implemented last year in a different format, DEBRA Italy is now preparing to launch a dedicated “Centro di Ascolto” (Listening Centre), designed to offer accessible and professional psychological support to both patients and caregivers.

For updates on these activities, follow DEBRA Italy on social media or visit www.debraitalia.org