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NEWS


DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EB
The COSEB workshop was held by the COSEB Steering committee and DEBRA research managers of Austria, France, Ireland, Spain, and the UK.
Jan 31, 2024


NEW! Neonatal Care in EB: a Clinical Practice Guideline now published
It highlights management priorities in neonatal EB care and provide clinicians access to recommended treatment and preventative care options
Jan 10, 2024


Last call to get patients involved in the GRIDD study
The online survey takes 10-20 minutes to complete and is open only until December 31, 2023.
Dec 21, 2023


DEBRA UK's grant call for 2024
UK and international applications are invited from 1st February – 31st March 2024 for DEBRA UK project grant and small grant award...
Dec 20, 2023


New international research projects from DEBRA Austria and EB Resnet
Contracts for two new research projects have been successfully issued by EB Resnet 2022.
Dec 15, 2023


Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL
DEBRA Indonesia hosted a free webinar to increase awareness and knowledge of oral and dental health for EB patients
Aug 21, 2023


DEBRA Spain's work in funding research, international collaboration, and EB healthcare
DEBRA Spain are delighted to announce they will be dedicating €100,000 to a research project to develop a topical gel to treat RDEB wounds.
Aug 21, 2023


DEBRA UK announces its first approved drug repurposing clinical trial
This clinical trial will see an existing licensed treatment for psoriasis clinically tested on children and adults with severe EB simplex
Aug 13, 2023


LifeArc and DEBRA Austria launch £2.5m funding call for repurposing therapies for EB
This Special call will seek innovative proposals to develop therapeutics for severe unmet needs that can be brought rapidly to EB patients.
Jul 14, 2023
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