DEBRA groups hold COSEB workshop: working towards harmonization of outcomes in EB
NEWS
NEW! Neonatal Care in EB: a Clinical Practice Guideline now published
Last call to get patients involved in the GRIDD study
DEBRA UK's grant call for 2024
New international research projects from DEBRA Austria and EB Resnet
Building smiles and empowering Butterfly Children- research and webinar on oral health and QoL
DEBRA Spain's work in funding research, international collaboration, and EB healthcare
DEBRA UK announces its first approved drug repurposing clinical trial
LifeArc and DEBRA Austria launch £2.5m funding call for repurposing therapies for EB
DEBRA Chile holds 2nd Research Day for EB patients and families
New clinical trials online tool goes live
DEBRA Ireland launches an EB Expert Panel to help shape its support and research priorities
Remembering Prof Jouni Uitto
Take part in an international research study on burden and resources in EB - online survey