DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB
DEBRA Egypt holds arts and crafts lessons for girls with EB that helps raise funds for those with EB
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DEBRA International
- May 25
- 1 min
DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'
DEBRA Italia and Fondazione Reb celebrate charity concert 'MUSIC AGAINST DIFFERENCES'
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DEBRA International
- May 19
- 1 min
DEBRA UK completes its largest ever EB patient insight study
DEBRA UK completes EB patient insight study to better understand how EB impacts a patient's life and the type of care they receive.
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DEBRA International
- May 5
- 1 min
DEBRA International attends the 2023 EWMA Conference
DEBRA International attends the 2023 EWMA Conference
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DEBRA International
- Mar 23
- 1 min
DEBRA Croatia celebrates Rare Disease Day
DEBRA Croatia celebrated Rare Disease Day with a radio & television feature, Zoom lectures, & took part in an event by Rare Disease Bahrain.
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DEBRA International
- Mar 15
- 1 min
EURORDIS Black Pearl Awards 2023: United for Ukrainians Living with a Rare Disease
Orphan Diseases of Ukraine received the EURORDIS Black Pearl Award: United for Ukrainians Living with a Rare Disease.
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DEBRA International
- Mar 14
- 1 min
DEBRA Colombia attends the 33rd National Congress of Dermatology
DEBRA Colombia was invited to attend the trade show with a stand to continue raising awareness of EB and care routes in Colombia.
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DEBRA International
- Mar 13
- 1 min
Yasmin El Samra Foundation-DEBRA Egypt 'draws' interest in their annual competition
Every year, the Yasmin El Samra Foundation-DEBRA Egypt in cooperation with El Sawi Wheel Center in Cairo has held a drawing competition.
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DEBRA International
- Mar 8
- 1 min
Celebration of the 15th World Day of Rare Diseases in Colombia
On 26th February, the 15th World Day of Rare Diseases was commemorated in the city of Bogotá, Colombia.
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DEBRA International
- Mar 7
- 1 min
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
DEBRAs International and Egypt attend the MENA Organisation for Rare Diseases 2023 meeting in Dubai
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DEBRA International
- Mar 1
- 1 min
First health workshop "Salud sin Fronteras" ("Health without Borders") held in Mexico
The free workshop was held over two days and aimed at healthcare professionals, the EB Community, patients, and families.
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DEBRA International
- Feb 28
- 3 min
Nada Ashraf from Egypt shares her story this Rare Disease Day
Nada Ashraf from Egypt shares her story this Rare Disease Day
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DEBRA International
- Feb 28
- 1 min
Your members' chance to participate in “The story of my skin” Art Contest
The Art Contest called “The story of my skin” started on 28th February during International Rare Disease Day and will finish on 30th May.
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DEBRA International
- Feb 24
- 1 min
DEBRA UK commissions EB patient insight study
DEBRA UK has commissioned a specialist medical research agency to conduct a detailed EB patient insight study on their behalf.
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DEBRA International
- Feb 22
- 1 min
EURORDIS Photo Awards 2023
'Smile to life, whatever the obstacles'
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DEBRA International
- Feb 21
- 1 min
Congratulations to Amryt Pharma - recipients of a EURORDIS Black Pearl Award!
We are delighted to share that Amryt Pharma received the EURORDIS company award for patient engagement at the Black Pearl Awards
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